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The Arc FINDS Survey 2010

The Arc FINDS Family and Individual Needs for Disability Supports

This informational survey is being conducted by The Arc, a national disability organization whose mission is to promote and protect the human rights of people with intellectual and developmental disabilities and actively supports their full inclusion and participation in the community throughout their lifetimes.

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Put to the Test

Genetic screening is more accessible than ever, and health-care providers are scrambling to catch up.

When my children were born in the mid-1990s, new parents could already see that prenatal genetic testing was altering the terrain of pregnancy and childbirth. Growing numbers of educated women were having children at older ages, with resulting difficulties . . . » Continue reading

Open-label Add-on Treatment Trial of Minocycline in Fragile X Syndrome


Results from this study demonstrate that minocycline provides significant functional benefits to FXS patients and that it is well-tolerated. These findings are consistent with the fmr1 knockout mouse model results, suggesting that minocycline modifies underlying neural defects that account for behavioural abnormalities. A placebo-controlled trial of minocycline in FXS is warranted. Trial . . . » Continue reading

In Pursuit of Elegance

A nice article about Dr. Mark Bear from the MIT Spectrum.

The first time his laboratory colleagues broke out the champagne, Mark Bear was barely old enough to drink it. Still an undergraduate, Mark had uncovered a new neural connection in the brain. “I was amazed that there were still tremendous discoveries to be . . . » Continue reading

Seaside Therapeutics are Tackling Fragile X

This weeks C&EN magazine has an article about Seaside Therapeutics and their unique funding stream which allows them to avoid cutting corners and focus on on basic research and early tests for their Fragile X and autism treatment studies.

Tackling Fragile X

September 13, 2010 | Volume 88, Number 37 | pp. . . . » Continue reading

Scientists Identify New Drug Strategy Against Fragile X Syndrome

Scientists identify new drug strategy against fragile X syndrome

Contact: Jennifer Johnson 404-727-5696 Emory University

Researchers at Emory University School of Medicine have identified a potential new strategy for treating fragile X syndrome, the most common inherited cause of intellectual disability.

The researchers have found that a class of drugs called . . . » Continue reading

Research Study for Females 14 to 20 in Boston, MA

Fragile X Gene and Ovarian Function Research Study

The Reproductive Endocrine Unit at the Massachusetts General Hospital (MGH) in Boston, MA is conducting a study to investigate the relationship between the Fragile X gene and ovarian function.

Daughters in families affected with Fragile X spectrum disorders are wanted to participate as study subjects. Subjects . . . » Continue reading

UC Davis MIND Institute: Drug appears to aid children with fragile X syndrome (Minocycline)

New survey study results from UC Davis.

Drug appears to aid children with fragile X syndrome

Date: 2010-08-31 Contact: Phyllis Brown Phone: (916) 734-9023 Email:

SACRAMENTO — One of the antibiotics most commonly prescribed to treat adolescent acne can increase attention spans and communication and decrease anxiety in patients with fragile . . . » Continue reading

Cambridge's Seaside has new approach to Fragile X

The following article was published in The Boston Globe on August 23, 2010.

Matthew’s liberation Seaside at forefront of new approach to Fragile X

By Karen Weintraub Globe Correspondent/August 23, 2010

It was the week the medication didn’t work that convinced Melissa Zolecki. She thinks her son Matthew got a bottle of inactive dummy . . . » Continue reading