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New, Family-Friendly FXTAS Website Launched!

The National Fragile X Foundation (NFXF) has launched a new web-site devoted entirely to helping those impacted by fragile X-associated tremor ataxia syndrome (FXTAS) and the professionals who work with them. Already many hundreds of individuals have accessed the information developed by a committee of professionals, family members and web specialists. If you, your loved one, or someone you work with is dealing with this Fragile X-associated Disorder we think you will want to visit www.FXTAS.org.

FXTAS is an “adult onset” neurodegenerative disorder, usually affecting males over 50 years of age. Females comprise a small part of the FXTAS population, and their symptoms tend to be less severe. FXTAS affects the neurologic system and progresses at varying rates in different individuals. All individuals with FXTAS are carriers of what is called a “pre-mutation” of the “fragile X” (FMR1) gene.

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