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By Melissa, on January 7th, 2011
One thing I know many of us struggle with is finding specialists who are familiar with and are successful in working with kids or adults with Fragile X.
We are going to circulate a form (by e-mail) which the National Fragile X Foundation developed. We are going to ask you to complete this form . . . » Continue reading
By Melissa, on December 30th, 2010
I want to point out, in case you’ve missed it, that the National Fragile X Foundation has provided us with a number of books to share with you all. Please check out the Resource Library for a listing of our current volumes. Contact Eric or I if there is anything you’d like to borrow. . . . » Continue reading
By Eric, on September 26th, 2010
To continue with the precedent of adding a new feature on reaching a milestone of users “liking” us, we’ve added Twitter to expand our web visibility. You can follow us at @FragileXMA.
By Melissa, on September 22nd, 2010
By Eric, on September 12th, 2010
Thanks to some publicity from Holly Roos of Central Illinois Fragile X we broke the 75 user “likes” on our Facebook Page and that’s a good milestone so we’re going to push out a new feature. We added a Regional Groups page which lists all of the Fragile X groups in northeastern US. If . . . » Continue reading
By Eric, on September 2nd, 2010
We’ve just added the newest feature to our site, a Fragile X event calendar. We put up the calendar as an easy way to see upcoming events. Our plan is to include events in the New England area, web/phone events and any event that people from our region would want to go to. So . . . » Continue reading
By Eric, on August 23rd, 2010
Welcome to the website for the newly formed Fragile X LINKS Group of Eastern Massachusetts!
This website will be undergoing a lot of changes as the group takes shape over the coming months. On our homepage we’ve put a form for users to fill out if they’d like to be kept up to date . . . » Continue reading
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