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A Grant for Traveling to Clinics

Planning a trip to a Fragile X Clinic? Ask your clinic’s coordinator about the Fly With Me Fund grant which helps with travel and lodging!

Top 10 Things a Teacher Should Know About Fragile X Syndrome

Students with Fragile X Syndrome can often be like the proverbial girl with the curl in the middle of her forehead – when they’re good, they’re very, very good, and when they are bad they are horrid.

Knowing these 10 things will help bring out the good and minimize the horrid!

The #1 . . . » Continue reading

What is #GivingTuesday?

Thanksgiving is right around the corner, and for most people that means spending time with family while enjoying great meals, good times, and a big helping of gratitude.

Then comes Black Friday, the day when stores nationwide have blowout sales and people line up around the block for the best deals.

After that . . . » Continue reading

New LINKS Groups Sprouting Across the Country!

The LINKS Support Network is a wonderful way to get involved in the Fragile X community on a local level, to meet new families, share experiences, work together to raise awareness, advocate, fund raise, build friendships and most importantly, be a part of the support for families just like yours. Visit our LINKS . . . » Continue reading

Full Mutation, Premutation or No Mutation At All

Here in the Fragile X world we spend a lot of time parsing mutations, CGG repeat numbers and trying to define Fragile X. From a medical and scientific point of view, that effort is necessary so that clinicians and researchers can communicate with each other in a descriptive and . . . » Continue reading