Latest Updates

    None Found

Decoding Autism

This is big time, my friends! FORBES!

Decoding Autism By: Robert Langreth

Mark Bear, 53, has been fixated on understanding the brain since he was 6–when he saw news commentators speculating about John F. Kennedy’s brain functioning after the shooting. He later became a neuroscientist, now at the Massachusetts Institute of Technology, spending most . . . » Continue reading

Planning for the Future: A Transition Service Workshop Series

Planning for the Future: A Transition Service Workshop Series for parents and families of students who receive special education services and are interested in learning about specific aspects of transition planning.

Presented by: Cambridge Rindge & Latin School, Office of Special Education

Hosted by: Jennifer Garcia, Transition Coordinator

All Workshops are FREE and Open . . . » Continue reading

Dr. Don Bailey on the radio.

On Saturday, as part of the amazing weekend that Tammy and Andy Selinger and the rest of the Fragile X Society of Connecticut planned, Dr. Don Bailey of RTI International spoke about Fragile X Syndrome on The Talk of Connecticut.  Listen here as he explains Fragile X to a whole new audience.

Very nicely . . . » Continue reading

Fragile X on the Radio in CT

Don Bailey, Ph.D., distinguished Fellow, RTI International, NC will be a guest on the Brad Davis Talk of Connecticut radio program on Friday morning, 10/15 at 6:50 AM EST.  This is the kickoff to the Fragile X Society of Connecticut’s 3rd Annual Fragile X Conference weekend.

If you can’t tune in at the scheduled . . . » Continue reading

Put to the Test

Genetic screening is more accessible than ever, and health-care providers are scrambling to catch up.

When my children were born in the mid-1990s, new parents could already see that prenatal genetic testing was altering the terrain of pregnancy and childbirth. Growing numbers of educated women were having children at older ages, with resulting difficulties . . . » Continue reading

Family takes pride in siblings' independence

MEDFORD — Daniel Maloney just got a promotion, his third in 11 years.

He’s an assistant cook at Medford Leas, where he serves up daily dishes such as marinated flank steak and butternut squash bisque for more than 200 residents at the retirement community.

Maloney has Fragile X Syndrome, the most-common inherited cause of . . . » Continue reading

Open-label Add-on Treatment Trial of Minocycline in Fragile X Syndrome

Conclusions

Results from this study demonstrate that minocycline provides significant functional benefits to FXS patients and that it is well-tolerated. These findings are consistent with the fmr1 knockout mouse model results, suggesting that minocycline modifies underlying neural defects that account for behavioural abnormalities. A placebo-controlled trial of minocycline in FXS is warranted. Trial . . . » Continue reading

Obama signs "Rosa's Law;" "mental retardation" out, "intellectual disability" in

It’s official! “Rosa’s Law” is now federal law after President Obama officially signed it today! It mandates that Federal statutes will no longer use the term “mental retardation” replacing the phrase with “intellectual disability.”

THE WHITE HOUSE Office of the Press Secretary

FOR IMMEDIATE RELEASE

October 5, 2010

Statement by the Press Secretary

On . . . » Continue reading

In Pursuit of Elegance

A nice article about Dr. Mark Bear from the MIT Spectrum.

The first time his laboratory colleagues broke out the champagne, Mark Bear was barely old enough to drink it. Still an undergraduate, Mark had uncovered a new neural connection in the brain. “I was amazed that there were still tremendous discoveries to be . . . » Continue reading

House Approves Bill Removing ‘Mental Retardation’ From Law

The House of Representatives unanimously approved a bill Wednesday evening paving the way for the term “mental retardation” to be replaced with “intellectual disability” in many areas of federal law.

The legislation known as Rosa’s Law now goes to President Barack Obama who White House officials say intends to sign the measure.

Under the . . . » Continue reading