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Business Meeting on June 21, 2014

On Saturday, June 21, 2014 at 3:00 p.m. we will be hosting our next business meeting in Cambridge, MA. If you are interested in attending please contact via an email to EasternMA@fragilex.org to RSVP prior to June 16.

Topics to be discussed include:

The creation of a Strategic Plan to guide the group over . . . » Continue reading

Advocacy Day Round-up **Action Requested!**

For the past 4 years Eric & I have been attending the National Fragile X Foundation’s annual Advocacy Day in Washington, DC. This year our son, Caleb (9, FXS), joined the Massachusetts delegation for the first time. Also in attendance from Massachusetts were Denise & Kelley Devine and Kathleen Quinn. Ed Hanrahan, a long . . . » Continue reading

Still Time to Register for National Fragile X Advocacy Day!

Today is the final day for registering for National Fragile X Advocacy Day March 4 & 5 2014! National Fragile X Advocacy Day is an annual event organized by the National Fragile X Foundation. We encourage you to attend to let your voice be heard by your Senators & Representative at a time when the federal budget for 2015 is being discussed…. . . . » Continue reading

Inaugural Business Meeting

On Sunday, March 16, 2014 at 2:00 PM we will be hosting our inaugural business meeting. If you are interested in attending please contact via an email to EasternMA@fragilex.org to RSVP prior to March 7.

Topics to be discussed include:

The creation of a Strategic Plan to guide the group over the coming year. . . . » Continue reading

Fall Family Social - Apple Picking!

Join us at Shelburne Farms, on Sunday, October 14, 2012 beginning at 11:45 AM, for the Fragile X LINKS Group of Eastern Massachusetts Fall Family Social!

Each child will receive a quarter-peck apple picking bag and a small pumpkin.

We have reserved a tented picnic area from 11:45 to 1:15; please feel free to . . . » Continue reading

April 14, 2012 - Tracy & Mouse come to Worcester, MA!

We are very excited to announce the details of our first conference! There is only room for 200 people so please register ASAP!

Hyperarousal & Sensory Integration Strategies for Home and School

Date: Saturday, April 14, 2012 Time: 8:00 AM – 4:00 PM Where: Arthur and Martha Pappas Amphitheatre University of . . . » Continue reading

Save the Date! Tracy & Mouse are coming back to MA!

Fragile X Educational Conference

Hosted by: Fragile X LINKS Group of Eastern Massachusetts Fragile X Resource Center of Western Massachusetts

Saturday, April 14, 2012

Featuring Special Guest Speakers

Tracy Stackhouse and Mouse Scharfenaker from Developmental FX! Tracy and Mouse will be speaking about core issues in fragile X syndrome with a focus on understanding . . . » Continue reading

MA residents, can you write a letter for us?

Eric & I will be leaving for Washington D.C. on Monday, March 8th in order to participate in the National Fragile X Foundation’s annual Advocacy Day event. This will be our second year attending. If anyone would like to write letters for us to deliver we would love to be able to do so. . . . » Continue reading

Dr. Lenonard Abbedutto at UMASS Worcester on Thursday, February 23, 2012

Sorry for the short notice but we just learned that Dr. Len Abbedutto, PhD, Director of the MIND Institute, UC Davis, will be presenting at UMass Department of Psychiatry Grand Rounds from 12 PM to 1 PM. Dr. Abbedutto’s topic will be “Fragile X Syndrome and Language Development: Phenotype, Variation, Mechanisms and Treatment.”

Grand . . . » Continue reading

Visiting with Santa options

We are aware of two sensory friendly Santa events, if you are aware of any others please let us know!

Saturday, December 10, 2011 — Lowell, MA

A Very Special Santa for “Sensory Kids”: Saturday, December 10th, 2011, 9:30 a.m. – 11 a.m., Pollard Library, 401 Merrimack Street, Lowell, MA. Children . . . » Continue reading