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Study of Fragile X Treatment Preferences (earn money for the NFXF!)

Please consider taking this RTI survey, it will take approximately 20 minutes and RTI will donate $15 to the NFXF for each survey completed! It’s an easy way to help the Foundation with its mission!

Treatment Preferences for Fragile X Syndrome.

Visiting with Santa options

We are aware of two sensory friendly Santa events, if you are aware of any others please let us know!

Saturday, December 10, 2011 — Lowell, MA

A Very Special Santa for “Sensory Kids”: Saturday, December 10th, 2011, 9:30 a.m. – 11 a.m., Pollard Library, 401 Merrimack Street, Lowell, MA. Children . . . » Continue reading

Moms' Night Out - December 7, 2011

Our Moms’ Night Out event is now a monthly affair! Please keep us in mind for the first Wednesday of each month!

Our next night out is on Wednesday, December 7, 2011 at 7 PM. A few moms will be gathering, once again, at a restaurant in Framingham for dinner and laughs. If . . . » Continue reading

Moms' Night Out - November 2, 2011

On Wednesday, November 2, 2011 at 7 PM, a few moms will be gathering at a restaurant in Natick for dinner and laughs. If you are interested in joining us, please shoot me an e-mail for details!


Foodies for FRAXA - Fragile X Fundraiser

On Sunday, October 9, 2011, The Ice House in Rye, NH will be hosting a fundraiser for FRAXA from 11 AM to 8 PM.


The Ice House 112 Wentworth Road Rye, NH


11 AM – 8 PM

We will be attending, if you want to meet up with other . . . » Continue reading

Wrightslaw Seminar in Leominster, MA

This is not precisely Fragile X related but for any parents of school aged kids who could use some help with IEPs these seminars are reportedly incredibly good. The seminar is scheduled from 9 – 4 on Thursday, October 27, 2011.

One-day special education law and advocacy programs focus on four areas:

special education . . . » Continue reading

Connecticut Fragile X Awareness Day

Connecticut Fragile X Awareness Day was September 13, 2011. Andy Selinger did an appearance to spread awareness.

. . . » Continue reading

4th Annual Connecticut Fragile X Conference

The Fragile X Society of Connecticut will be hosting their 4th annual conference in central Connecticut (at the UConn Health Center, Farmington, CT) on November 19, 2011. 

The topic this year is “Successful Transitions – Planning for the Education and Employment Years”

The presenters are:

Vicki Sudhalter, Ph.D. (New York State Institute for Basic Research . . . » Continue reading

STX209 Research Trials in Massachusetts.

Phase III Trials for Seaside Therapeutics’ STX209 are now ongoing. There is a trial site in Massachusetts this time. We had a chance to speak with Michael Hill, the Research Coordinator, at the UMASS Worcester location to discuss the trial process and decided to share it with you in case you are considering taking . . . » Continue reading

National Fragile X Awareness Day!

Today, July 22nd, is the 12th annual National Fragile X Awareness Day!

If you haven’t already, please visit the Fragile X Awareness page and share it with your friends and family. We’ve shared our story and we hope you’ll share yours as well. The National Fragile X Foundation has also created a . . . » Continue reading