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New LINKS Groups Sprouting Across the Country!

The LINKS Support Network is a wonderful way to get involved in the Fragile X community on a local level, to meet new families, share experiences, work together to raise awareness, advocate, fund raise, build friendships and most importantly, be a part of the support for families just like yours. Visit our LINKS . . . » Continue reading

Full Mutation, Premutation or No Mutation At All

Here in the Fragile X world we spend a lot of time parsing mutations, CGG repeat numbers and trying to define Fragile X. From a medical and scientific point of view, that effort is necessary so that clinicians and researchers can communicate with each other in a descriptive and . . . » Continue reading

Fall Family Social - Apple Picking!

Join us at Shelburne Farms, on Sunday, October 14, 2012 beginning at 11:45 AM, for the Fragile X LINKS Group of Eastern Massachusetts Fall Family Social!

Each child will receive a quarter-peck apple picking bag and a small pumpkin.

We have reserved a tented picnic area from 11:45 to 1:15; please feel free to . . . » Continue reading

April 14, 2012 - Tracy & Mouse come to Worcester, MA!

We are very excited to announce the details of our first conference! There is only room for 200 people so please register ASAP!

Hyperarousal & Sensory Integration Strategies for Home and School

Date: Saturday, April 14, 2012 Time: 8:00 AM – 4:00 PM Where: Arthur and Martha Pappas Amphitheatre University of . . . » Continue reading

MA residents, can you write a letter for us?

Eric & I will be leaving for Washington D.C. on Monday, March 8th in order to participate in the National Fragile X Foundation’s annual Advocacy Day event. This will be our second year attending. If anyone would like to write letters for us to deliver we would love to be able to do so. . . . » Continue reading

Dr. Lenonard Abbedutto at UMASS Worcester on Thursday, February 23, 2012

Sorry for the short notice but we just learned that Dr. Len Abbedutto, PhD, Director of the MIND Institute, UC Davis, will be presenting at UMass Department of Psychiatry Grand Rounds from 12 PM to 1 PM. Dr. Abbedutto’s topic will be “Fragile X Syndrome and Language Development: Phenotype, Variation, Mechanisms and Treatment.”

Grand . . . » Continue reading

Study of Fragile X Treatment Preferences (earn money for the NFXF!)

Please consider taking this RTI survey, it will take approximately 20 minutes and RTI will donate $15 to the NFXF for each survey completed! It’s an easy way to help the Foundation with its mission!

Treatment Preferences for Fragile X Syndrome.

Visiting with Santa options

We are aware of two sensory friendly Santa events, if you are aware of any others please let us know!

Saturday, December 10, 2011 — Lowell, MA

A Very Special Santa for “Sensory Kids”: Saturday, December 10th, 2011, 9:30 a.m. – 11 a.m., Pollard Library, 401 Merrimack Street, Lowell, MA. Children . . . » Continue reading

Moms' Night Out - December 7, 2011

Our Moms’ Night Out event is now a monthly affair! Please keep us in mind for the first Wednesday of each month!

Our next night out is on Wednesday, December 7, 2011 at 7 PM. A few moms will be gathering, once again, at a restaurant in Framingham for dinner and laughs. If . . . » Continue reading

Moms' Night Out - November 2, 2011

On Wednesday, November 2, 2011 at 7 PM, a few moms will be gathering at a restaurant in Natick for dinner and laughs. If you are interested in joining us, please shoot me an e-mail for details!

Melissa melissa@fragilexma.org