Welcome to the website for the Fragile X LINKS Group of Eastern Massachusetts!
If you would like to keep informed of our ongoing advocacy, educational and family support efforts please enter your name and e-mail address below.
If you are a recently diagnosed family or simply need a little support, please feel free to call us. Our primary motivator is supporting families and we enjoy hearing from you!
If you’re curious about our logo, read “Why a butterfly?”
| Founders | |
|---|---|
| Eric Welin Co-Founder eric@fragilexma.org home (617) 858-0392 cell (603) 759-5151 |
Melissa Welin Co-Founder melissa@fragilexma.org home (617) 858-0392 cell (603) 759-8379 |
| Professional Contacts | |
| Jonathan D. Picker, MD, PhD Medical Director, Fragile X Program Geneticist Children’s Hospital Boston phone (617) 355-4697 fax (617) 730-0466 |
Sharyn Lincoln, MS Clinical Coordinator, Fragile X Program Genetic Counselor Children’s Hospital Boston sharyn.lincoln@childrens.harvard.edu phone (617) 355-4688 fax (617) 730-0466 |